Yet Another Post About My Nose

Remember when I thanked the Baby Jesus for hydrocodone? Joke was on me, because that drug turned on me shortly after that writing. I won’t color your day with all the details, but let’s just say that my constitution was not up to the jump from an occasional Motrin to The Hard Stuff. My desperate messages to the on-call doctor were met with, “Hrm… I’m not really comfortable prescribing you anything else. Try Tylenol.” I guess as long as he’s comfortable. Now, I understand exactly what his concern would be with giving a patient he doesn’t know something like a narcotic pain killer. But still, shouldn’t there be a list of people who, say, got their faces cut open that very day? And maybe those people could get a little slack from the suspicious late-night doctors. Apparently not in this case. And so I white-knuckled it through the night. Bad. Very bad.

The sun did finally rise and when I got my doctor’s nurse on the phone she, bless her, texted him in the middle of surgery to get permission to help me out. As someone who was on the table yesterday, I did not approve of this interruption. But as me, it certainly seemed like the only reasonable thing to do. Tylenol with codeine was procured and life became bearable again.

Also really interesting: I would have sworn to you that I didn’t feel much different on codeine other than the relief from the pain. Except for how I spent all day insisting I could hear Elliot crying, while mom and Damon told me “Not so.” So I guess I was totally normal except for the hallucinations.

Yesterday the splints came out. The less said about that the better. And now I’m cruising by on just a little Tylenol and extra rest. I think that means I can ring down the curtain on this fascinating story, at least until a few weeks or months go by and the intended benefits kick in. I plan to do some really skillful, varsity-level breathing.

Quick Update

Hydrocodone is starting to kick in, thank you baby Jesus. Feel like I have been hit in the face with a shovel — much more pain than I expected. Operation took one hour and is being hailed as a success by surgeon. Thank you for the good wishes. I’m pleased to say that my blog friends will not be needed to help raise my kids, as I survived the general anesthesia. Did I mention that was the plan?

How much you want to bet I won’t remember writing this?

60%

A very kind developmental specialist came to our house last Thursday. She brought tennis balls! And blocks! And she was very popular with Elliot. He flirted and giggled, really putting his best baby foot forward. She was a little bit of  a tease, what with all the putting the ball under the cup, but Elli was able to get past it.

I told her about the things most concerning to me. He has a few words he used to say, and now doesn’t. He will no longer tell me what the damn dog says, even though he used to do it unprompted regularly. Occasionally he sounds like he has something in his mouth. He doesn’t have many words. He doesn’t do many consonants. He’s not much of a babbler. I felt like every sentence I said started with “He doesn’t…”

All that said, when she called to say he’d scored 40% behind on communication skills it rocked me back a little bit. We’re a family of communicators. We will communicate the stuffing out of you. If she’d told me he is 40% behind on parallel parking or swimming in a straight line skills I could make a very strong nature AND nurture argument for shrugging my shoulders and saying, “What can you expect?”

Still, as the world is a funny place, 40% behind is better than 20% behind. 40% qualifies him for early intervention services. 20% qualifies him for “Sorry about your luck!” I did share with the evaluator that my greatest fear was not having a problem I suspected confirmed but that he’d be one of those kids who loses out on help because his problems aren’t quite bad enough. We were prepared to go it alone through private speech therapy or whatever else he needs, but in a situation like this there is no way we can recreate the comprehensive nature of being embraced by “the system.”

By the way, I think I need to probe with them if Elliot’s issues can be fully explained as a communication deficit. I don’t think he’s not saying “woof woof” anymore because he physically can’t. I don’t know why. Maybe he’s messing with me.

Our case worker (or whatever you might call that person who will  coordinate our efforts) will come back on Valentine’s Day to create a plan. I think it’s a baby version of the IEP (individual education plan) that older kids get. I’m looking forward to seeing her, both because I’m eager to continue to unravel the mystery and because I enjoy any reason to talk about my kid unreservedly without worrying about social niceties that require I let it go already (Oh hey, blog readers!).

Here’s why I’m still not losing sleep over this: With the exception of some teething rage, Elliot is a perfectly cheerful little guy. I know that learning deficits have the potential to some day make him miserable. But for now they’re not. So we’re going to regard our development glass as half full. It’s more than half full. It’s 60% full.

On an unrelated note, I’m leaving in 45 minutes to get sinus surgery. It all happened so fast. Last week I went in for an allergist appointment. Cat scans happened. A doctor said, “You have the biggest turbinates I’ve ever seen.” (Go me!) and then they were booking the surgical suite. I’ve never had general anesthesia before. I like to micromanage my doctors in process, remind them that I’m there and a person and all that. So I’m probably a little more nervous than I’m letting on. I’ve heard everything from, “You’ll be up and about in a day or so.” to “You’re going to need to go on short-term disability.” We’ll know the truth shortly.

 

 

Bookmarking: Gift for a Baker

At most conferences you’ll get a little goodie bag. ALT was no different.

My favorite item was this little guy from Mrs. Anderson’s Baking. I’ve got a baker friend in mind and she’s getting this (super cheap! $5!) set the next time I want to give her a lift.

I just need to know where “scooch” is.

Elliot Days

Sometimes my husband teases me that I favor Alden. Not because it’s true, but because it makes me swat him and he thinks that’s funny. It’s natural, I suppose, for me to talk more about Alden since he… talks. He’s funny. Elliot’s funny too, but much more in a “you had to be there” sort of way since he’s not yet really verbal.

Speaking of. Elliot is 16  months old now, and still not saying much. I know. Everyone knows at least one kid who didn’t speak until he was four and went on to be an Oxford scholar or a Disney Mouseketeer or insert-whatever-impressive-outcome-here. I swear I’m not actively worrying. But. At his one-year checkup the doctor said, “His language development (receptive primarily) isn’t quite there. Let’s keep an eye on it.” Then at the 15-month checkup he said that and then he said, “Do you have a history of learning disabilities or speech impairments in your family?” He still feels comfortable taking a wait-and-see approach. But knowing the value of early interventions, I’m done waiting and am more into seeing.

A very nice woman from the early intervention services for our state came and did a preliminary evaluation at our house. I’m amazed at how easy that was to make happen. After a little flailing around trying to figure out who to call, the whole thing just rolled. I didn’t need a doctor referral. All I needed was my own opinion. Nice, that trusting the mom bit.

She concurred that Elliot isn’t where he should be both in speech and receptive language, so now someone else is coming out to do a more in-depth analysis. It may well turn out his problem is too mild to qualify for services, but I’ve been reassured that if that’s the case I will be directed to other resources that can help close the gap.

The problem itself is odd. The best way I can describe it is that he doesn’t do nouns. Weird, I know. But if I tell him to “Kiss Daddy” he will kiss… whoever is closest. His few words are all verbs and exclamations. “Look! Up!” There are a few other oddities. He used to say “Boon” for balloon, but doesn’t anymore. He sometimes sounds a little like there’s something in his mouth, but when I go fishing I find it’s empty. He’s never said “Mama.” Jerk.

He is making progress. “Ball” is a new entrant to the vocab and I think he sees enough of those that it will stick. Balloons can be a little thin on the ground, after all. Also, in the course of one day he suddenly picked up the ability to point to four different body parts after looking mystified about the location of his nose during many months of daily prodding. He’s also, and always has been, very attached and affectionate. And he’s generally happy. I feel like I can stay pretty sanguine as long as he’s happy.

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